Wednesday, August 12, 2009

Yesterday Caleb and I were off to Georgetown University Hospital for his follow-up CT scan (last surgery was May 12th, so this was his 3 month mark) and an appointment with Dr. Newkirk. The good news is; the tumor has not grown in this period AND Caleb's upper nasal cavity is open (just above his eyebrow and close to the remaining tumor that was left because it was too close to his eye.) Dr. Newkirk was very happy about that. Now the plan is to keep Caleb healthy, as in no sinus infections, to do this he needs to continue his nasal rinses 2X's a day. We will go back to see the doctor in January or February unless Caleb gets a cold and then we need to call the him, with the tumor still there and not really knowing if the original path to Caleb's brain for the meningitis was due to the tumor it is very important that he not have those "streptococcus pneumoniae" germs hanging around in his sinus cavity. Thanks to everyone for your prayers and care for us during this time. As I recount the events to myself or others I am always amazed at God's faithfulness in ALL things.
Even though Caleb is better I will try to keep this updated in case anyone "out there" is interested!! Oh and BTW, he is released to spar and even endure a head shot now and then!!

Thursday, June 11, 2009

We just got back from our weekly trip to Georgetown and will not have to go back for 2 weeks!!
Things look good, are still healing and we were "strongly warned" to watch for any signs of infection and call them if needed.
Caleb will need to keep up with the nasal rinse 2 times a day and saline spray 4-5 times a day but he can spar and lift things over 5 lbs. His brothers will be very happy about the lifting part!! He can now help carry in the massive amounts of groceries we need each week.
Well, I will try to keep other things updated between now and our next D.C. visit, maybe we should go sight seeing instead!!

Wednesday, June 10, 2009

Daniel and Maddie (Heather's 14 month old!) Daniel escorted a friend to her prom so we took these before he left.

Daniel graduated 6-5-09 after 13 years of homeschooling!!! Hurray!!!!

Well I should have posted last Friday because we had another DR visit for "nasal cavity" cleaning or as we affectionately call it the "nose picking"! The Dr. numbs Caleb's nose by spraying stuff in it then uses suction and a long curved tweezer like thing to clean stuff away so he will not get a sinus infection while he is healing. Caleb needs to use a nasal rinse 2X's a day and lots of saline nasal spray so the weekly Dr. visits will be effective. We go back again tomorrow at noon.
As of last Thursday, we will have about 3 more visits, then a CT scan mid-August at which time Dr. Newkirk said he will be able to tell if the tumor is growing or not and based on that we'll know what happens next! Caleb is feeling very good, has been released to go back to Taekwondo but must "take it easy", which means no head shots while sparring!!

Thursday, May 21, 2009

May 21, 2009 by Genoa
I am not very good at keeping this up to date but here's the latest on Caleb....
We went back to GUH last Saturday to have the upper packing taken out and Caleb had taken some pain meds and his antibiotic with only a piece of toast so between that and the "extraction" he got sick when we got home and had a bit of a rough day. Recovered from that and went to church on Sunday then to see Star Trek with some friends (and Mark) after church.

On Tuesday we (Caleb & Genoa) drove back to GUH and Dr. Newkirk cleaned out the surgical site, we will go back once a week for the next 4 weeks to have that done and then that will be followed by a CT scan in 2-3 months to see where things stand. A part of the tumor close to Caleb's eye was left because it was so close to his eye, the pathology report came back as an ossified fibroma, which is what we thought and is BENIGN!!!
Caleb is allowed to return to work in the After School Program at Tiger Claw (his Taekwondo school) but is not allowed to "rough house" ! :-) Also it will be a while before he can resume his own TKD training.
We have had many wonderful friends providing meals for us almost every evening and what a tremendous blessing that has been!!! Thanks so much everyone!

Daniel has played varsity baseball with the Leesburg Christian School Lions for 3 years and this past Friday his team won the STATE CHAMPIONSHIP in O.D.A.C.S. (the League of Christian Schools they are in) for the 2nd straight year!!
I was able to go and watch both games and even go watch Star Trek on an IMAX screen between games (now that was fun!)

John turned 13 last Sunday and we now have 4 teen-age boys.....18, 17, 15 and 13!! What fun!

Thanks to everyone for praying, GOD IS SO GOOD!!!